O. Di Gregorio
Abstract
The transformation of haemophilia from a life threatening disease into a long-term manageable condition is changing the role of the haemophilia nurse specialist It will likely be less clinically focused and have a greater emphasis on psychosocial support, including motivation, shared decision making, support and self-advocacy for patients. Placing the person in all his complexity at the center of the treatment process is the main objective that the entire health system must achieve: it is no longer possible to reason in pharmacocentric terms, but the patient's needs must be given priority.
It is important to introduce valuable services, such as patient support programs, aimed at significantly improving the quality of life of the patient and of those who assist him and which, at the same time, involve and respond to the needs of the clinician who remains the primary reference for the patient...
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